Management of younger onset dementia (YOD) in Aboriginal and Torres Strait Islanders people, residing in remote areas of New South Wales (NSW).
Dementia is an umbrella terminology that encompasses range of health disorders which are characterized by the progressive dysfunction of brain that includes speech difficulties, perception, vision, personality, orientation, cognitive skills, incontinence, and high infection rate followed by reduced life span. In a survey conducted by Vos et al. 2007 concluded that dementia is the second leading reason for the death of indigenous people of Australia and further concluded that around 15 % of indigenous death is due to dementia.
Figure 1 Leading causes of death in Indigenous Australian, 2003(Source Vos et al. 2007)
YOD is termed as a form of dementia which occurs before the age of 65 years. It is very rare before the age of 45 years, but it can begin in the early 30s and there have even been reports of onset in those who are in the mid-20s (Rinfrette 2010). It is estimated that in Australia approximately 10,000 populations has been affected by younger onset dementia (Alzheimer’s Australia 2009). According to data collected from Access Economics 2005, indicated that out of 87,961 cases of dementia in NSW in 2010, 358 has been reported in remote and very remote areas. And further it has been estimated that the rate will increase significantly to 1,026 cases in 2050 (Department of Health 2011). Interestingly, younger onset dementia (YOD) is considered as the emerging chronic health condition for indigenous people at comparatively young ages (under 60 years), especially people residing in remote areas of NSW. It has been statistically stated that indigenous hospitalisation for mental health problems peaked for those aged 25–34 years and 35–44 years (46 and 49 per 1,000 population, respectively). At the peak rate, Indigenous Australians were more than twice as likely to be hospitalised for mental health problems as other Australians. According to Broe et al. 2009, number of indigenous youngster is at high risk of younger onset dementia associated with head injuries and cognitive damages due to drugs intoxication and alcohol abuse.
According to study conducted by Alzheimer’s Australia 2009, the reason behind the onset of dementia in Aboriginal and Torres Strait Islanders is probably due to
- Prevalence of high rates of chronic disease
- Excessive and risky alcohol consumption and homelessness.
- Limited access and availability of dementia support counselling and services (Broe et al. 2009).
- Fear of Aboriginal and Torres Strait Islanders to undergo medical system and treatment (Broe et al. 2009).
Indigenous populations along with health professionals are unaware about the facts that younger people may have dementia. Generally indigenous community refers dementia as a “sick spirit” and believes that lose of connection to the land, culture, tradition and customs cause these sickness (Broe et al 2009). And in addition, limited research has been done on the younger onset dementia regarding the indigenous population lining in remote area due to cultural, languages and geographical difficulties. As a consequence, there is poor and limited access to services that provide care and social support for younger indigenous people and their careers and the condition can have a devastating impact on the person with younger onset dementia, their family, their children and their friends (Alzheimer’s Australia 2009). Thus there is need of management of YOD among the indigenous population in remote area of Australia.
Propose six question that would answer the scope, nature and priorities of dementia (YOD) in aboriginal and Torres Strait Islanders.
Understanding the need and necessity of management of dementia in Aboriginal and Torres Strait Islanders in remote areas this unit has proposed six cardinal questions that would address all the issues regarding scope, nature and priorities of dementia.
- Which type of dementia is most common in Aboriginal and Torres Strait Islander in remote and rural areas of Australia and rate of dementia?
- Which indigenous population in the remote area is mostly affected by dementia?
- In which gender dementia is most common or prevalent?
- What is the extent of dementia within the remote area of Australia?
- What are the risk factors associated with dementia and factor affecting diagnosis of dementia in indigenous people?
- What are the burdens, trend and mortality rate of dementia in indigenous population?
Outline of major categories included to indentify and answer the question raised.
Following categories will be included,
- Geographical Distribution.
- Demographic Distribution.
- Risk Factor (including education, employment, drug use, alcohol abuse and other risk factors).
- Trend and morbidity of the dementia .
- Availability of health services need to manage dementia
To analysis the need of younger onset dementia in indigenous people in remote area of New South Wales, Australia, following step will be considered,
- All the relevant data will be collected from the authorised and secure website and publications. Following website will be used to accumulate the data for the interpretation and assessment of the health need proposed because all the relevant and authentic data are available in this website regarding Australian population.
- Australian Institute of Health and Welfare (AIHW).
- Alzheimer’s Australia.
- Department of Health (DoH).
- Access Economics.
- Australian Bureau of Statistics (ABS).
- Health Statistics of NSW.
- Dementia Collaboration Research Centre.
- Others authorised journal publication wed site.
- As the health need is about aboriginal and Torres Strait Islanders residing in remote area of Australia, primarily geographical distribution of indigenous people will be identified from the website. For instant Australian Institute of Health and Welfare and Australian Bureau of Statistic will be used to accumulate these data.
Fig 2. Representing geographical distribution of indigenous people in Australia (Source AIHW).
- Indigenous people affected with younger onset dementia will be identified on the basis of demographic distribution such as gender and particular age group. For the determination of these data AIHW, ABS, Alzheimer’s Australia and Department of Health (DoH) will be used. It is mandatory to collect these data so as to identify which age group has been severely affected by dementia and to compare the prevalence of younger onset dementia within male and female of indigenous society in remote areas.
Fig. 3. Prevalence of dementia in indigenous and non indigenous population of Australia (Source AIHW)
For example, from the above mentioned data it had been estimated that in indigenous population the rate of dementia significantly increased with the age group 25, peaked with age group 35-44 and declined further. From evidence it had been identified that Vascular dementia and head injury dementia was the main reason for the significant increment in these age group.
- All the factors that are associated with the massive increment of younger onset dementia will be included. Factors included will be
- Drug abuse
- And other risk factor that promoted the prevalence of younger onset dementia in aboriginal and Torres Strait Islander in remote areas of Australia.
For identification of all these factor along with the trend of YOD will be been extracted from AIHW, ABS, Alzheimer’s Australia, Department of Health, Health Statistics NSW and the journals published by authorised publication like Pub med.
- Availability of health services to manage dementia within the indigenous community and utilisation of these heath services will be focused. From the previous study about the indigenous people of Australian suggest that the geographical difficulties, limited health work force, stubborn ignorance of indigenous population and unwillingness of these people to visit health facilities provided to indigenous community has limited the visit of indigenous people to utilise the facilities provided to these community. Thus regarding these issues data will be collected to understand the situation and know whether there is any progress in the utilisation of health faculties. The data or information will be collected from AIHW, Department of Health, ABS and other journal publications.
Limitations of data source
As a matter of fact, collection of data is a tedious process. And in addition data collection of indigenous population in rural and remote area in even more difficult because of the geographical difficulties, language issues, cultural and social barriers and stubborn tolerance of aboriginal community. Following limitation could be prevalent while extracting data from the above mentioned websites,
- Lack of information or data about the indigenous population.
Due to geographical difficulties, only limited research has been done in the remote area. As a result only few data are available about the health status and health issues in indigenous community. Thus it is difficult to collect the appropriate data from the data source.
- Misdiagnosis(Carrington et al. 2011)
In most of the surveys and reports, it has been suggested that due to cultural and language issues, adequate information and data regarding health issues of indigenous people has not included. This circumstance certainly affect the accuracy of the data presented and leads to faulty report and inaccurate conclusion of the data collected.
- Under-reporting (Anderson , Baum & Bently 2007)
Fear of Aboriginal and Torres Strait Islanders to undergo medical system and treatment (Broe et al. 2009) has led to under-reporting of health status of indigenous people.
Factors that will determine the extent of this health problem in 20 years’ time
Following factors will determine the extent of YOD in 20 years time
- Life Expectancy
Recent evidence from ‘Close the Gap’ reporting and data suggests that the health and life span of Aboriginal and Torres Strait Islander people is improving (Thomas et al. 2006). On the other hand, any increment in life expectancy may lead to an increase in the prevalence of dementia because more people will live to the age where the prevalence of forms of dementia such as Alzheimer’s disease is the highest, estimated to be responsible for 70% of dementia cases in old age above 65 years. Thus if this situation arises then form to dementia will shift from vascular and frontotemporal dementia to Alzheimer’s dementia in next 20 years.
- Management of Life style and diet
As younger onset dementia is largely associated with head injuries and cognitive damages due to drugs intoxication and alcohol abuse management of diet might alleviate the risk of YOD. On the other hand, management of this risk factor might increase the life expectancy of indigenous people and further leads to increase Alzheimer’s dementia which is more frequent in old age.
Access Economics 2005, Dementia Estimates and Projections, NSW and its regions, NSW.
Anderson, I., Baum, F. & Bentley, M., Exploring the underlying Social Determinants of Aboriginal Health, Paper from the Scoial Determinants of Aboriginal Health Workshop, Adelaide.
Australian Institute of Health and Welfare 2011, The health and welfare of Australian’s Aboriginal and Torres Strait Islanders people an overview, Cat No. IHW 42, Canberra, AIHW.
Alzheimer’s Australia 2009, National Consumer Summit Younger Onset Dementia Not too young for dementia, Canberra.
Broe, G.A., Pulver, L.J., Arkles. R., Robertson. H., Kelso. W., Chalkley, S. & Draper. B., Cognition, Ageing and Dementia in Aboriginal and Torres Strait Islanders people: A review of the literature, Dementia Collaborative Research Centre Assessment and Better Care Outcomes, pp. 1-4.
Carrington, C.J.S., Li, J., Mitrou, F. & Zubrick, S. R.,” Socioeconomic disparities in the mental health of Indigenous children in Western Australia”, BMC Public Health, Vol 12, pp. 1-12.
Department of Health (DoH) 2011, New South Wales Dementia Services Framework 2010-2015, GL2011-004, NSW.
Rinfrette, E. S. 2010, Impact on Informal Caregivers for those with Early Onset Dementia, State University of New York, Buffalo, http://gradworks.umi.com/34/07/3407891.html.
Thompson, P., Bradshaw, P. M., Veroni, M. & Wilkes, E., “Cardiovacular risk among urbasn Aboriginal people”, Medical Journal of Australia, Vol. 179, Issue. 3, pp 143-146.
Vos. T., Barker. B., Stanley. L. & Lpoez A. D, 2007, ’The burden of disease and injury in Aboriginal and Torres Strait Islanders peoples: Summary Report”, Brisbane, School of Population Health, The University of Queensland.
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